Finding Inspiration

I just got back from my weekly poking at the drs. I’m down to 5ccs now…I mean really? We are going to truly ride this out til the very end aren’t we. Whatever. So I go back in 2 weeks.  I’m starting to just accept that every week (now two) I’m going to get a needle stuck in my side to see how much fluid we extract.  Might I say from some of the support boards I’ve been on other people have like major fluid…not this measly amount to deal with.

Anyhoo…I was reading through some blog posts of fun exciting people like myself who have taken this little journey or are currently taking it.  I got to thinking about what my purpose is for even writing a blog. I started this as a way to keep my friends and family updated on my progress.  Of course after the initial “I HAVE CANCER” everyone is interested everyone is concerned.  Then as time goes on fewer and fewer people are engaged in your progress or what you are going through.  I know someone who was diagnosed with breast cancer that told me once she was diagnosed she stopped reading my blog.  Now, I was trying to understand that.  And in part I do. But I am such the opposite. When I was diagnosed I joined a support group though the cancer center and then the on line boards which led me to a lot of different people blogging about their experience. The people I met in Chemo were more than inspiring and I learned so much about not only my cancer but other types of cancer.  I joined a work out group for cancer patients where again listening to people’s stories inspired me and taught me event more. I listened to the struggles of other warriors out there and learned to appreciate my situation. I found comfort that other people were making it through the struggle. They were having bad days too. They weren’t always positive.  They weren’t always negative.  It made me feel that I wasn’t alone in this journey and that some of the things I was going through and feeling were okay.  So now that my friends and family are pretty much over this journey…Many of them think that as soon as you get through a certain point it’s all okay. What I’m finding is that each step has it’s own struggles and it’s far from over.  It’s a long process that I have stated before that not everyone has the stamina to hang in there with you.

So here I am in another limbo (lots of BAM! treatment….sit around and wait) I’m in Physical Therapy, still getting one stupid seroma drained just waiting until the day I can raise my arm over my head so I can start radiation.  So again….if my readership is down why the heck am I still doing this?  I think at this point it is first of all for me.  It’s been helpful to get my thoughts down and go back and re-read where I was at what time. I also THINK my hope is to help someone who has gone through this.  I hope that someone who has been diagnosed or is in some limbo stage where you are frustrated and losing hope that you will get to move on can see that there is a struggle to stay sane through the rough times. That everything must end at some point.  And you will get to move on; not always when or how you want, but you will get to move on.

I know I have a long journey left, and a lot of story to share ahead.  I’m starting to ponder the life after treatments and what the new normal will be like.  Will I always live in fear? Will I finally accept living each day in the present? Will I gain my self confidence back? Will I lose a part of myself? What will I gain?  What lessons will I truly take away from this experience?  And I think, for me, a big part is knowing that my story is not the only story out there.  There are others just like me who are asking these same questions.  I want to find some of these people and learn how they dealt with each stage, each setback, what kept them going. I want to share how I dealt with each of these things as well to hopefully help someone along just like me.

So to those friends and family who still read this silly thing every now and then…thank you.  For those who are going into war or in the war….I hope my posts can help in any way…and never be afraid to ask me questions if you have them.  I have found that you may not win every battle, but as long as you win the war it’s all good.

Side story here:  So when you have breast cancer by the time you go through Chemo and have surgery you are so over any bit of being discreet.  The dr has interns that he brings in…”do you mind” and I’m like “nope…there are still a few people left in the hospital who haven’t gotten to touch my chest yet…so why not”  And like I just take my shirt of before people leave the room….like seriously…nothing to see here…and like I said…so many people have looked and touched my chest the last year…who cares! LOL!

 


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2 thoughts on “Finding Inspiration

  1. Definitely keep writing! I find my writing to be sort of like a spell- helping me to understand the lay of the land while helping validate my experience to my inner critic. “Like no really, this really happened, here it is in paragraphs.”
    I’m glad I didn’t pay attention to readership the first year. The second year I pretty much checked out of my blog and stopped writing. And now writing during the third year post diagnosis I seem to be slowly being found by other readers, other cancering gals, like you:). Most days it is pretty small readership, other days it might be more.
    I say keep writing, because it does help others, and probably definitely helps you.
    Xo Iris

    • I agree with you. I have that same though of understanding and validating. I find I go back and re-read a lot…just to see where I was at that time. I enjoy reading your blog! You inspire me!!!

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