I created a Facebook group that just gives basic updates as they happen. You know, because people don’t always want to hear all the details and me ranting about everything. (I can’t imagine why!)
I have my notebook ready all divided out so I can keep track of things and have all my questions and stuff in one place.
As I was doing research and learning more about all this Metastatic stuff, I came across a site that was very interesting. And of course there was information about being a peer to peer leader. Well DUH. So I submitted my application to see if I get accepted to run a support group specifically for Metastatic Breast Cancer (MBC).
Of course then I got thinking. I’ve been looking for an organization to help raise money for and have an annual event. Well…look at that. Then of course I was thinking some more and I have been putting my coaching business on the sidelines because I really didn’t know what I wanted to do with it. Well I think I know now.
I’ve been spending a lot of time on Cancer Boards and specifically MBC boards. It’s interesting that MBC is really not known. People either don’t want to bring it to the forefront because it’s what people die from and it makes them feel uncomfortable or they just have no idea what it’s about. Honestly before I was diagnosed with cancer I had NO clue there were different types of breast cancer. And now that I’m part of the MBC community I’m learning crazy stuff about this.
Most of the funding and research is going towards prevention. And although that is wonderful, what about the people who are already terminal? There is a movement to get MBC to the point where it’s not a death sentence, that it would be looked at as a chronic condition. But because of the lack of education and research funding that isn’t happening.
I’ve never been someone who was passionate about anything really. I mean okay, yeah, I feel strongly about certain topics but nothing I have been truly passionate about. Even with just a cancer diagnosis I was kind of distancing myself from it because I didn’t want it to define me. I just wanted it to go away. But with this, it’s different. Maybe because my life is kind of on the line here.
The first 2 days after I was diagnosed were rough. I was scared to death and had no idea what to do. Now as much as I love to sit around and binge watch shows I am going to just sit around and wait to die. I mean that could take years and what a waste. I decided I was going to take a week off to think and figure out things in my head. How do I want to spend the rest of my life, whether it’s 1 year or 15 years? I know that studies have shown keeping busy and staying active helps you mentally and physically to live longer. SO, that’s what I’m going to do.
The one thing I haven’t quite figured out is my business. It’s not a “am I going to keep doing this” sort of decision, it’s more of a “what direction am I going to take this in.” What is most important to me and what am I truly passionate about? I don’t know that dealing with weddings is where I want to go. Or maybe I do a specific type of wedding. I just have to do things that truly have meaning. I have always had this thing where I need to help people…and I’m talking people who need it and appreciate it.
You know I do things what I think is blindly and somewhere down the line it all falls into place.
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