MRI Results

MRI BREAST BILATERAL W WO CONTRAST

DATE OF EXAM: 6/13/2016 5:19 PM

INDICATION: Breast ca s/p neoadjuvant chemo; C50.812 stage III B invasive
lobular breast cancer left breast. Status post neoadjuvant chemotherapy.
Presurgical evaluation.

TECHNIQUE: Bilateral breast magnetic resonance imaging was performed without
and with intravenous contrast using high resolution dynamic imaging on a 1.5
Tesla scanner. The examination was performed using a dedicated breast coil with
dynamic pre and post-contrast imaging. Computer aided evaluation was performed
using CADstream technology on an independent workstation. This includes motion
registration, multiplanar reformatted imaging, and kinetic enhancement
evaluation. The following pulse sequences were obtained: 1) Axial T2 FSE with
chemical fat saturation (FS); 2) Axial 3D T1, dynamic high resolution 3D T1
multiphasic images with FS (VIBRANT); 3) Axial subtraction images; 4) Post
gadolinium sagittal and axial 3D FSPGR T1 images with FS.

CONTRAST: The patient received 8 mL of Gadavist intravenous contrast.

COMPARISON: MRI of the breasts from February 2, 2016

FINDINGS:

There is mild background parenchymal enhancement in both breasts.

Right breast: There are unchanged mildly complicated appearing cysts with
intrinsic T1 shortening and no significant enhancement. This likely represents
proteinaceous debris. These are unchanged in size including a 1.3 cm cyst at the
anterior 12:00 position and a 1.1 cm cyst at the anterior 9:00 position. There
is also mild duct ectasia. There is no enhancing mass or area of nonmass-like
enhancement within the right breast.

Left breast: There is marked decrease in regional nonmass-like enhancement
previously encompassing nearly the entire outer left breast. There is a biopsy
clip positioned at the upper outer left breast at mid depth. Just posterior to
the clip, there is mild residual nonmass-like enhancement extending posteriorly.
There is also subtle nonmass-like enhancement extending posteriorly and
inferiorly at the outer and outer lower breast. The enhancement now shows no
worrisome kinetics without rapid enhancement. There is no residual worrisome
kinetic enhancement. The residual nonmass-like enhancement is very difficult to
measure in size. The most significant residual component within the upper outer
breast measures approximately 2.9 cm in length and 1.9 cm in craniocaudal
dimension. This similar area measured approximately 4.7 x 2.9 cm on the
comparison study.

There has been near complete resolution of level 1 left axillary adenopathy.
There is a very small residual level 1 left-sided axillary node which measures
up to 0.4 cm in short axis. There are no significantly enlarged or
morphologically worrisome right axillary lymph nodes.

There are no enhancing bony lesions.

My journey through pictures…Phase I…Chemo

So from the MRI and the biopsy that confirmed my life through the last day of Chemo….

It was a time.  Good days and bad days.  But one thing is for sure, I don’t ever want to have to go through any of that again!  And I would never wish it on my worst enemy.  Even though I’m starting to feel better, I’m far from done and I know some effects of chemo will continue for months possibly years after the last session.

FYI my hair started really falling out about 4 weeks into chemo.  I decided to just shave it since it was very upsetting to have clumps of hair come out at a time.  I’m now waiting to see how long it will take to start growing back!!!

With the weight.  I actually gained 10 lbs during chemo. Which if you talk to the drs that is a good thing.  There is no losing weight allowed during chemo. I was told to make sure I keep my calories up by any means to make sure I stay strong.  So I did.  Sometimes the only thing your body will accept is things that aren’t necessarily good for you.  But it beats the alternative of losing a bunch of weight and having transfusions and being hospitalized because your immune system is so bad.  My immune system held up pretty good for the most part.  The last session my numbers dropped pretty low.  So I’ve had to pretty much stay away from people and out of public to avoid germs.  I’ll know next week if I’m allowed back into the general population again!

The anti hormone shots are a killer.  And to think I get to do those for the next 5 years.  Yay!

I did finally stop taking the anti nausea medication a few days ago.  That has actually helped…I don’t crave sugar any more.  So I can finally get on the eating right kick.  Yay fish!  So lots of cooking which isn’t a bad thing.  Also been starting out with walking for 30 minutes each morning.  I’m sure over time I will increase that and change it to running but for now, I have to build up again.  Also started resistance training, stretching and yoga.  So the 3 main things to keep this stuff away….Diet, Exercise and De-stress my life.

Waiting patiently for phase 2 which I find out about next week.  Up next:  Immunotherapy and Surgery!

Life after Chemo So far

The one thing I have learned on this journey so far is to just relax and appreciate everything around you.  Nothing in this world is that important that you can’t take the time to just enjoy what you have around you.

I wake up and check all the news and social media to get caught up on everything that is going on in the world.  Shake my head because most of it is so ridiculous.  Then go for my walk with the dog through the woods.  at 8:00 in the morning it’s the perfect temperature.  I started out by walking down to the end of the property. Now I’m up to about a mile.  Although yesterday I did do two.  After my walk I get the coffee and my english muffin and sit out on the back deck and listen to the birds and nature.  Just sit there.  No TV, no radio.  As I was sitting there I was thinking how wonderful it is to be in this spot.  Not much to complain about, if anything.  I’m getting to feel more normal every day, I have a roof over my head, food on my plate, a good man by my side, an awesome dog and stress free surroundings in the middle of the woods.  I don’t think it gets much better than that.

I don’t take the days for granted that’s for sure.  And just enjoy not feeling horrible.  I spent 3 months in pain and feeling like death and boy does it feel good not to feel that way.  My heart goes out to those who have to endure chemo for a half a year or years.  There is a guy I met in Chemo that will be going through it for the rest of his life.  It’s what is keeping him alive.  I hate that he has to go through that and to see the tiredness and pain in his eyes is heartbreaking. I just know I don’t wish that on anyone.

So while everyone is bitching and complaining about life in general stop and think if you really have it that bad.  As the old guy in Wal Mart said to me…”I woke up…I’m not in that much pain…it’s going to be a good day!”

Phase 1 down…onto Phase 2!!!!

Chemo is OVAH!

That’s really all.  I don’t have a whole lot of other information to report.  The tumor has pulled away from the chest wall like it was supposed to and I have a consult with the Surgeon next week to talk about when and what we are going to do.  Then the next week I’m having an MRI done to see what is going on.

I can’t tell you how much of a relief it is to know that I only have like 2 more weeks of the poison flowing through my veins….and more importantly my hair will finally start to grow back in about 2-3 weeks!  VERY EXCITED.

Once I know more I’ll of course report it.

I was thinking though…..This reminds me a lot of Basic Training.  They tear you down and build you back up.  In a lot of ways this is the same thing.  This has tore me down to my core physically and emotionally and will then be responsible for rebuilding myself to be a better person for having gone though all this.  So I guess I better decide what I want to do with this blank slate once I have it.

**UPDATE – They changed my Pre-op to the 16th so that the Surgeon can read the MRI before we meet (what a concept).  So I won’t know anything until the 16th now….OH THE WAITING!  I mean I understand they can’t really do anything until after a few weeks after chemo treatment because it messes with things and I’m not going to be feeling better by then anyway…so it’s all for the best.  But I’m just very anxious to move on to this next phase!!!! Like I would do the surgery tomorrow if they would let me!

No news is good news

I haven’t written in a while.  Nothing really to report.  The treatment is going okay. Because my white blood count was good they didn’t give me the Neulasta shot this last time.  So we’ll see how that works.  The only real side effect besides being tired all the time and the needles and pins from my knees down.  I’ve been doing pretty good with the nausea for the most part as long as I keep on top of my meds.  I’ve been overly emotional the last few weeks. You would think that with the whole anti-hormone thing I would be emotionless or something.  HA!  They did put me on an anti depressant (lots of anti stuff going on).  The only thing I can think of is so it’s set up and ready to go for the impending surgery.  I have a feeling that’s going to be kinda hard.  All I know about that so far is I have 2 more chemo treatments then we are going to take some pictures to see what is going on. Then if everything looks good we will talk more about the surgery.  I’ve been thinking about it.  Hard to say how I really am going to react.  I could be totally fine with it or I’ll totally lose it.  It’ll be interesting that’s for sure.

Still don’t have a full kitchen. I have cabinets.  I have counter tops.  I have a dishwasher and a sink.  Waiting on the oven and the refrigerator still.  This should happen on Thursday of this week.  Then we just have to wait for all the trim for the cabinets and it will be done.

Spent part of mothers day in the ER.  Pete was fixing part of the house (oh we are getting gutters on Thursday!) and he was cutting a piece of wood that flung off the table saw into his gut.  He didn’t think much of it at first and then it started to swell up.  So to be safe we went to the ER.  They did an ultrasound just to make sure there was no damage.  He’s good.  Bruised up a bit but he’s fine.

 

 

Battle Mode

Round 2 of chemo started on Tuesday.  They are stacking my Taxol so instead of doing once a week for 12 weeks I’m going to do every other week for 8 weeks.  As long as my numbers stay good I’ll be done on May 31st vs. July 5th.  So that’s good news.  The booster shot (which helps the body produce white blood cells) they give me on day two is just taxing.  Imagine someone sticking knives in  your bones.  This is what it feels like when your body is forced to make white blood cells.  It’s a super good time. Luckily it only lasts for a few days!

I was at my fit to fight session.  I went in pain because it was team competition and of course we won.  I’m not competitive at all.  Anyhoo.  I’m sitting there and this guy comes up to me and asks me if I’m a survivor.   I had no response other than “no I wouldn’t say that. I’m in treatment still so I guess I’m still a fighter.”  He said that he could tell I was on Survivor mode by my look.  Yes sporting the chemo tan, wearing a beanie over the bald head look.  He told me his story, welcomed me to the brother/sisterhood and gave me a fist bump and walked away.  At this point I break down because well I was just given an anti hormone shot the other day and am an emotional wreck because of it.  So that was a good time.  But made me realize I need to toughen the heck up!!!!  I’m not embracing this as I should yet.  I mean I’m getting better, but still not full out warrior. But there is really this community of cancer people that you are automatically accepted into the club if you too have cancer.  Gee…not really a club I wanted to be a part of but…okay I’ll take it.

In a few weeks I’m going to be volunteering for the Fit to Fight Triathlon.   That should be fun.  Maybe being around more cancer survivors will help with this battle mode I need to be in more.

So I have 3 more chemo sessions left (hopefully!).  I am starting to really look at this one day at a time and not get too ahead of myself since I still have quite a road ahead of me still.  The whole thing is quite the roller coaster.  I have my chemo session and day 1 is tiring but not too bad.  Day 2 I get booster shots so still, I’m tired but it’s tolerable. But I’m very emotional and it’s usually a bad day. Days 3, 4 and 5 I am just in pain and tired.  Then about Day 6 I’m just tired but start to want to really go do things.  It builds up til I feel just about normal and then I start all over again.  It’s really exhausting.  Poor Pete has to deal with all this mess.  He should get a vacation when all this is over and done with!  I really think it’s harder on the loved ones than me.

Oh Chemo

Well the last week has been quite the ride.  I think it builds up.  They said it wouldn’t.  They don’t know shit.

Day of Chemo was fine.  And the day after was okay.  But the next day.  Geeze! I have been dragging for the last few days.  And I got this really cool side effect that my entire body hurts to touch it.  Not a muscle or a bone thing, literally every thing just hurts to the touch.  So that made sleeping pretty non existent for a few nights.  It’s slowly getting better but it has not been a fun run this time around.  Nausea has been at an all time high this week as well.  Bland things are my friend. The only downfall is my taste buds have changed and there are some things that just don’t even sound good.  So to get anything that remotely is eatable is a good thing.  I do manage to eat salads for lunch so that hasn’t changed and it’s still working for me.  Fruit is still my friend.  So I am all about apples and grapes right now. And peanut butter.  Still love me some peanut butter!  I’m hoping that once this next round starts I can get into the habit of eating a little better.  Right now they told me my focus is on just eating anything that will stay down.  Which is great, but I feel like I need to figure something out.  I keep getting told that right now calories are more important than anything.  Okay fine.  Am I eating things I’m not supposed to.  Yep. sure am.  When I talked to the dr and dietitian they told me not to worry about it….as long as I was eating good things too it’s fine.  There will be time to worry more about my diet after chemo ends.

I started reading this book “Anti Cancer – A new way of life” by David Servan-Schreiber.  The plan is to read this by the time I start my next round of chemo and go balls to the wall fight mode.  I’m kind of starting to get a little tired of all this being sick and tired thing.  I would like to get back to living my life again.  But I do realize that I’m on this path for a reason.  And I believe that reason may just be to teach me to stop stressing and learn to take care of myself and just relax and enjoy life.  I was looking back at the last 30 some years….I’ve been high strung, stressed, worried about everything and anything.  I mean you can’t stay like that at all.  So as I sit here during the day and read and chill out and piddle around the house feeling completely useless, I’m also being taught a lesson.  And I have to allow myself to do this.  It’s okay.  And in the end I’m going to enjoy everything around me and not stress any more about things around me.  Things are going to be as they are and no amount of stress or worry is going to change that outcome.  So I’m using this time to reflect.

 

 

Yay for prune juice!

Not getting into the title but just put a little bit in some water….good stuff. I have never had it before so it was a 50/50 shot. I add a little to water once a day…gets the job done.  My first attempt I drank 4 Oz out of the gates.  Let’s say I will NEVER do that again. Learn that lesson once!!!

Today was my last day of bug juice.  Four cycles of Adriamycin and Cyclophosphamide (A/C). The Adriamycin is the red stuff.  It’s been a rough road with these but not nearly as bad as some other people.  So I’m very grateful for not having quite the side effects as a lot of people!

In 2 weeks I start a 12 cycle once a week run with Paxlitaxel  (Taxol).  Not as potent.  So any cells that didn’t die from the A/C should die with the Taxol.  Between killing cells and the hormones shut down so as to not feed anyone we should be good.  The plan is to kill the cancer cells and starve them so they don’t come back.  Then we take out the dead tumor.  I was told today that it’s okay if the tumor doesn’t shrink as long as the cells die we are good.  But if it shrinks obviously that’s a plus. 

Nice to have phase 1 a down.  On to phase 1b!!!! 

Fit to Fight

Last night I went to my first Fit to Fight class.  It meets 2 days a week and is for cancer patients and survivors.  Met a wonderful group of people.  There are about 15 of us.  All different types and stages of cancer. I came out feeling pretty lucky.  I mean don’t get me wrong all cancer sucks.  But I could have it so much worse than I do.  So for that I am truly grateful.

Everyone seems very nice.  There are two gentlemen in the group (brothers) and of course where are they from?  Philly!  They left like 46 years ago, but still have the accent.  It was nice to talk to someone who sounds like “home.”  So it’s the little things.  But there is also a mother/daughter in the group as well.  Seems most people have some family history.  So for that my diagnosis is a bit odd.  But nothing to do about that at this point.

The first session we did a getting to know you ordeal.  Took a tour of the facility and just kinda got our feet wet.  Every session we will focus on a new type of exercise for 20 minutes.  Then do 20 minutes of strength on the machines and the last 20 minutes of some sort of cardio. I think it’s going to be a really good thing.  It’s very interesting to hear the journey of some of the others in the group and what they have gone through and are going though.

On the health side of the world, I’m doing okay.  I really try to pace myself.  The chemo is starting to really ware on me.  Where as I had all kinds of energy a week after treatment, now I am just kind of wore out a lot with bursts of normalcy.  Still trying to keep everything from ruling me.  Which is getting a bet easier for the most part.  I just hate not being able to go full force like I’m used to.  So it takes me a bit longer to get things done around the house and in general.  On the up side I only have one more treatment of the A/C and then I go to a “normal” chemo.  I’m hoping that won’t take as much out of me.  So we’ll see.

We moved into the house.  I don’t have a kitchen yet, but the bedroom is pretty much set up and I have the kitchen table up against the wall as a work space.  We do have the grill and the camping stove set up in the garage along with the old refrigerator.  So it’s kinda like camping….It’s going to make me appreciate my new kitchen all the more once it’s in in the next few weeks.  If all goes well I should have a kitchen by the end of April.  (hopefully sooner).  But in the meantime, I pick a box and unpack as much as I can.  We still have to finish painting. So we just do a little bit at a time.  Luckily we have no deadline or time frame to have every thing complete.  Although I would like to have everything done in the house by the time I have surgery.  That would be ideal.

It is nice to have a little more space.  And at this time I have at least one of my desks up in my craft room so I can actually sit at a desk and do weird things like pay bills.  Oh and taxes…there’s a story for you….yay identity theft!  But I’ll save that one for another day.  I do have to try to get those done this weekend.  At least I know all our stuff is in one place now!!

Yesterday and today we are getting the radon mitigation system put in.  It will be finished today.  So now the house is radon free. Which is a good thing because Lord knows I don’t want to end up with Lung cancer after all this!  Basically they run a pipe from under your foundation and have it go out the roof.  There is a fan that pulls the radon gas out so it’s not seeping into the living space any more.  Being in the mountains it’s kind of a thing.  But it is a thing no longer for us!  Whoo hoo!

Last thing I want to say today is how grateful I am for all my family and friends.  I mean everyone has been so wonderfully supportive of both me and Pete through this so far.  And I just wanted to shout out to everyone and let you know how much you are appreciated!  Every bit of positive vibrations count!

Update!

Let’s see.  I joined the Fit to Fight program.  It’s an exercise group for Cancer people.  Meets twice a week at the local gym here in town.  I had the initial baseline test yesterday.  They do the sit to stand test.  You stand and sit in a chair as many times as you can in 30 seconds.  Then you do a balance test.  And finally the treadmill test.  Twenty minutes at 2.0-2.5 mph and increase incline to 15 in 5 minutes intervals.  OR until you hit their number 6 on the perceived exertion scale.  I’m happy to say I got to do the full 20 minutes and 15 incline.  I’m not completely out of shape yet!  But I get a membership to the gym for the 2 months the program is active, and I can go as many times as I want during that time in addition to the 2 classes a week.  The classes are broken down into 3 20 minutes sessions.  The first 20 minutes is an instructional period where she will teach us about different health and fitness topics.  Then the next 20 minutes will be resistance training.  Either bands or the machines.  And finally the cardio portion.  So this should be fun. And one of the physical therapists on the team went to UNC in Greeley…graduated in 2011.  So that’s kind of cool.  Lots of people from Colorado around these parts it seems.

Chemo session today.  Seems as though the treatment is working.  The tumor is shrinking and pulling a way from my body.  It is compartmentalizing which is a good thing.  So Cruella ain’t happy.  Tomorrow when I go in for my Neulasta shot I’ll be getting the anti-hormone shot as well.  Since my type of cancer is very hormone receptive this shot is supposed to help block the hormones from helping the cancer thrive. So it’s another step that’s going to totally piss Cruella off and make her never want to come back to visit.  I have one more chemo session in 2 weeks of the hard core stuff, then we go to phase 2!  One phase will be down.  Then 12 weeks weekly of a much more tame drug.  So we shock and bombard the sucker and then when it’s down for the count we just hit her steady for a prolonged amount of time.  The plan then is to take what’s left of her out about 3 weeks after my last chemo.  Right now it’s mastectomy. I’m really okay with that. Not having the option to have her come back far outweighs my need for an ego at this point. So last chemo session is scheduled for July 5th.  Surgery should be around the week of July 25th.  Then I recover and do radiation.  Oh and I guess when you get radiation they give you a tattoo where they need to treat.  So I’ll be getting my very first tattoo because of this.  Of course they will end up taking it with the mastectomy so it won’t be there for long.

Overall they are very happy with how I have responded and reacted to all this treatment.  I think I am.  Of course I expected the worst.  But I’m totally just taking it one day at a time and one treatment at a time.