Tag Archive | chemo

I’m baaaack!

Jul23

It’s been a minute since I’ve written anything. Been a bit busy. I just looked and I haven’t posted since March 2023! Wow!

Okay, so… We moved to Louisville, Kentucky, in November 2024. Pete actually moved in October 2024, because I stayed behind to deal with the house! I finally just picked up and let our wonderfully amazing realtor, neighbor, and friend take care of things for us. Mindy and Steve are just the most wonderful people. I will for sure miss them the most.

Drove across the country, two dogs and a cat. My sister-in-law, who lives in Wyoming, graciously agreed to keep me company on the trip. We had a pretty good time. Stopped at Devils Tower, Mt. Rushmore, and the Badlands. OH, and Sturgis. It was pretty dead that time of year. But we saw some of the most incredible sights. And we stopped in Indianapolis to see her son, my nephew, for a bit. It was really nice to see him.

We spent 2 months in Airbnb’s with all the animals. That was super fun. I do not recommend. We closed on our house in Montana the same day we closed on the house here. So that was kind of nerve-wracking. We moved in the day before New Year’s Eve. I just wanted to sleep in my own bed! I think we got everything unpacked in less than a week. The house had this bright yellow door. The living room was yellow…I mean YELLOW, the kitchen/dining room was peach. And the bedroom was purple with a silver stripe. It was for sure very colorful. One of the first things we did was have the living room, hall, bedroom, kitchen/dining room, and bathrooms painted. I mean, for the love of all.

Weird being close to family again. Over the holidays, it was very overwhelming. Thanksgiving, my birthday (Pete decided to have a get-together to surprise me), Christmas. I had a family dinner in our house after it was painted and everything. Kind of an open house if you will. But I’m slowly getting used to everything. Weird going from being isolated from town and people all day to living in a neighborhood and having people to do things with.

It was disheartening to leave my DRS in Montana. Very emotional. I have been with them all since the very beginning. Initial diagnosis, the tears, the laughs, the stage IV tragedy. I still miss them like crazy. I have a new team here in Louisville. I have my Oncologist, whom I finally got to smile and laugh a bit. We are still trying to establish a relationship. I have a Cardiologist, because well, the heart thing. I was having heart pains, shortness of breath, and dizziness. Turns out it’s anxiety. I said that, but I guess they need to go through all the things to cover all the bases. I have an Oncology Psychiatrist, primary doctor, a bunch of nurses, and my pharmacy team. I’m going to be getting a Radiology Oncologist here in the next few weeks. But more about that to come.

Trying to learn who does what. Usually, my Medical Oncologist pretty much did it all except a few things. But I think it would have changed a bit had I stayed longer. I was already seeing the nurse most of the time. But the doctor. would always check in on me. It’s for sure a little more corporate here. Everyone has a specific job. Medical Oncologist oversees my cancer and any scans, treatments for cancer. My Onc. Psycharist handles the anxiety meds and keeps me grounded. There is a pain management group I’m in. My cardiologist, of course, is all about my heart and blood pressure, which has been a tad on the high side (shocking). And then my primary doctor, who is an absolute trip. I love him out of all my doctors. He looks at everything and balances everything out. Makes sure overall I’m doing good. He talked to my other doctors to keep everyone in the loop. We just did my cholesterol and well…meh. We also did my A1C. I’ve never had that done before!

Okay, let’s talk about cancer and all the fun. We have reduced my main med (Ibrance) because my white blood cell count has been giving us issues. I’m pretty much going in every other week to get my blood tested to see where we are. I’ve had so many scans: brain, CT, MRI, bone, and heart. I’ve had stress tests, heart monitors for 2 weeks, and I now have a CPAP machine. Evidently, I have sleep apnea, which I don’t snore anymore. So I suppose it’s nice to know I have less chance of dying in my sleep because I stop breathing. We have been playing with anxiety meds and mood stabilizers. I was completely fine with the Lexapro, but they seem to think I have some sort of depression. (News flash! I can’t imagine why.)

My cancer treatment hasn’t changed, just a lower dose of Ibrance; other than that, the same. I’m still doing my Zometa infusions; it seems every 2 months now. But the last time I did my tumor markers, they went up. I was having pain in my hip pretty bad. We did a CT and bone scan. The bone scan was a trip. I’ve never had one like that before. They shoot you up with some radioactive stuff, and you have to wait 3 hours, and then they do the scan. I have learned that during scans, I just zone out and use it to meditate…or sleep if they have my head stabilized. But they are going to zap the lesion on my hip to help with pain and hopefully keep it from growing any more. The reason they didn’t change my meds or are zapping more is because that’s the only one that seems they need to spread the party. Like dude, you have your space, stay in it.

So, yeah. Blood pressure is all over the place. I am on blood pressure meds. Had my cholesterol tested. Total was high. LDL was normal, HDL was high. We will see what they do with that. I’m thinking nothing. And I had my A1C checked. I’ve never had that either. Seems I’m prediabetic. Now, a few weeks ago I met with the oncology dietitian. Oh yeah, I have a dietitian too. She told me how I need to look at eating. Not to worry about calories, but to focus on the food. Basically, every meal should have a protein, a whole grain, and a fruit/vegetable. And of course some healthy fats. She said that this will keep my blood sugar stable, so I don’t go off on some binge. My cardiologist wants me to walk every day. Start low and gradually work up. She said not to worry about distance but time. So start with 10 minutes and every week or so add another 5 minutes. This should all help with my sleep. Did I mention I also have a sleep doctor? I’m going to start making trading cards and collect as many doctors as I can. (ha!)

I have closed my business, shut down all my brilliant ideas (except this one, of course). I’m not doing the magazine anymore. Oh, I was doing the layout for Wedding Planner Magazine for 3 issues, and I just had to stop. That’s a discussion for another time! So my job now is to take care of myself and be happy. I’m getting involved with the cancer community here. And I’m working on a top secret special project that is wonderful because I have no deadlines, and it’s not for anyone but me.

So welcome back to my crazy world!

Because I’m Fabulous!

Nov2

I met with my Medical Oncologist today.  I’m going to start on Aromasin (Exemestane) on Monday.  I take the Lupron shots every 6 months. This shot shuts my ovaries down so I don’t produce any estrogen. The adrenal glands still produce hormones so the Aromasin will stop this production of estrogen. This should ensure that this cancer that is estrogen driven can’t redevelop or do anything. I will be on these two medications for the next 10 years.  So the Lupron forces me into menopause.  Because there is no test to see when exactly my body will go into menopause for real, they are doing 10 years….by that time my body should have hit the natural menopause state. Interesting stuff right?  Now the Aromasin is a bit on the harsh side. Most people get put on Tamoxifen which has fewer side effects but isn’t as effective for my type of cancer. But if I can’t tolerate the Aromasin I’ll get switched over to the Tamoxifen.  If I can tolerate the Aromasin I may end up getting my ovaries removed so I don’t have to do the Lupron shot anymore. That would be one less medication to take. We’ll see how it goes. (just like Christmas…going to be quite the surprise!)

We are also stopping my Ativan (Lorazepam) for insomnia since it has seemed to stop working. We are going to change it up and going to Desyrel (Trazodone) we’ll see how that works out for me.  It’s supposed to not only help me sleep at night but help with any mood swings due to all the lack of hormones in my body. We’ll see how that works out. YAY Drugs!

At this appointment, my oncologist tells me now that I’m pretty much done with treatment that not everyone who goes through the rigorous aggressive course of treatfabment I took makes it.  I honestly didn’t know how to take that?  I mean that’s kinda scary. I have to think she meant that they had to break the treatment up some or change chemo drugs. Go me. Wow. Oh. I honestly have no idea how to react to that.  Just glad I didn’t know the odds before hand.
She checked out the lumps that have been bugging me the last few weeks.  I developed some bb sized lumps in my chest so when I found them a few weeks back my heart just sunk. She said they were probably nothing but we would keep an eye on them. The odds of any cancer developing at this point is about impossible.  But again, we would check them to see if they have changed in 6 weeks when I go back.

After this appointment, I went to Support Group.  Lately, I can only stay for the first 1/2 hour since I have to go to radiation.  Well, there is a new member. She had been diagnosed with stage 1 breast cancer 12 years ago. She had a lumpectomy and was good.  A few months ago it came back as metastatic breast cancer – Stage IV. My heart just hurts for her. She was so strong to come to support group and to announce that you have Stage IV cancer has to be just one of the hardest things in the world to do. I just wanted to hug her. While not curable, it is treatable. She’ll go on an oral chemo to keep it under control…..And I was just sitting there freaking out that this new medication said that I could lose my hair.  So I’m no longer freaking out about the possibility of losing my hair again or have it thin. This is why they make wigs.  So be it if it happens. Again something brought me down to the reality of the whole situation and to just be thankful to be alive. I also thought: I’m sure glad I made the decision to have a double mastectomy vs. just the single.  I mean they said that the odds of it coming back in another breast were slim to none. I was like yeah, it was a slim to none chance I got it in the first place so….I’d rather go through this once then have to go through it twice. But hey..there is no guarantee something else won’t develop down the line.  So I think I’ll just enjoy the time I have here and deal with whatever comes when it does.

Then I went to radiation. #30 #2 of the booster. 3 more left.  I’ve resorted to gang signs in the count-down.  But the chest is looking pretty bad ass at this point.  It’s getting quite impressive. Met with the Radiology Oncologist.  I told her about the bb sized lumps and she checked them out and said it was just scar tissue and effects to the tissue from radiation. Nothing to worry about. But again she said that we would keep an eye on it over time when we did CT scans.  Because you know I get to do those every 6 months now. So if anything develops from here on out we will catch it pretty quick. But she wants to see me again on Friday to check the status of my skin to see if we will do the last radiation treatment on Monday or just end it on Friday.  They are pretty impressed that I haven’t had to take a break with radiation. Most people have to take a few weeks off about half way through. It’s because I’m just that fucking amazing….really.

Now I’m not usually the type of person that boasts about myself…I’m actually very modest….even though I joke a lot about the whole Fabulous thing. But you know I think for this I’m going to make an exception.  Don’t worry…I won’t let it get to my head and I’ll only do it for a few days. :)

Oh. The downside of all this anti-hormone nonsense….my drinking days are pretty much over. I suppose it’s okay. I had a good run. And any more when I have wine or beer I feel like crap after just 1…so be it.

 

The Hair – The Journey.

Nov1

2-23-16

First day of Chemo 2/23/16

3-5-16

Just got port in few days prior to this 3/5/16.

3-7-16

Hair starting to thin 3/7/16.  Best to keep it braided…it was a HOT MESS! Literally one day it just started coming out in lumps

3-15-16

Hair really thinning 3/15/16. This was obviously NOT a good day.  Chemo was starting to get pretty rough at this point. And let me point out my head hurt from my hair coming out.

3-30-16-2

Got it shaved 3/30/16. Fuck that noise! Taking control of the situation.

4-30-16

Then it just fell out all over the place.. At least it was little hairs…..Just about gone 4/30/16.  During this time there are no face shots of me bald because we had also just bought a house, moved and something had to give…so this is as good as that got.

 

5-30-16

5/30/16 next to the last day of Chemo – Losing eyebrows and eyelashes. The last few months were pretty rough. I should have taken a picture of my hands.  They were brown and peeling…it was crazy.

6-30-16

6/30/16 a few days after surgery. I felt like one of those hairless cats….Looked like one too!!!! A month after chemo stopped and not a strand of hair on my body. These were probably some of the darkest days. 1 month post chemo

7-30-16

7/30/16 starting to come back. These were my weekly visits to the surgeon days. 2 months post chemo

8-30-16

8/30/16 Actual Hair coming in…feeling pretty bad ass about it. 3 months post chemo

9-30-16-2

9/30/16 Finally stopped wearing the scarf on my head. 4 months post chemo

10-27-16

10/27/16 Almost done with Radiation. Hair at strange awkward stage. 5 months post chemo

 

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11/7/16 Last day of Radiation. Last day of Treatment

 

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11/30/2016 6 months post Chemo. (Wednesdays we wear pink)

 

1/31/17 – 8 months since Chemo. Finally got it colored today! No cut though….

 2/28/17.  9 months since Chemo. Hair looks darker than it really is here. Bad lighting!

 

 3/30/17 10 months since Chemo.  And 1 year since I got my head shaved! Still haven’t gotten it trimmed or anything…just colored. I am wearing a headband so it’s pulled back. But kinda feeling like a hippie.

4/30/17 11 months since chemo. I can almost braid parts of it. It’s out of control and crazy. I have not gotten anything trimmed or cut yet. Still not sure I’ll ever cut it again. The thickness is a little less than it was before but not real noticeable. It’s getting better. Still really curly. I actually blow it out to straighten it. I’ll have to get a “natural” picture. But nice to not have to really use a curling iron yet.

Iconic – BITCH Get Off My Pole!

Sep20

As I was sitting here the last few days I’ve realized all the things that have gone on the last few years.  Two years ago on September 17th I had my hysterectomy.  I have a whole theory about how this is what threw my body into a hormonal frenzy which brought me to where I am today…but I won’t go into that.  I just remember at the time I thought that was like the worst surgery ever.  I think I would trade it now. So I take that back.

THEN last year on September 17th I left for New York to visit my cousin. See NYC/Madonna 2015 Trip for details.  I look back at some of the pictures and it was like they were telling me something… for instance:

20150918_125127 We were walking down the street and I just happened to pick out this picture and was drawn to it..so I took a picture thinking I may need to be reminded one day. Who knew that this was a message to myself in just a few short months.  I mean between the staying behind to sell the house while the husband moved to Montana, to the finding of the lump just 2 months later and trying to convince myself that it was nothing.  DENIAL!!!!  I don’t think I was really denial, it was me trying to stay positive.

Then there was this beauty:

What the heck possessed me to take this picture in the first place? I mean again…walking through 20150918_142219the park and of all the things to take a picture of…really?  The cosmos trying to tell me something. Not typically the type of picture I would take. But at the time it struck me.

So then we go to the Madonna concert. of course I had been listening to the entire album months prior. I mean one must be able to sing at least 90% of the songs at the concert you are going to!  But one song stuck out more that the rest for me.  Little did I know it would end up being my theme song through everything that has happened the last year. So I ended up playing this song as I left Colorado after being there for 17 years.  I played this as I entered Missoula, a place I had never been to but would end up calling home and a place my life would forever change.  I played this to every Drs appointment, every chemo appointment, going to surgery and will play it through every radiation treatment.  When I start to think I can’t get through something I play this to remind me to be Iconic.

Iconic – Madonna

[Intro – Mike Tyson:]
I’m the best the world has ever seen. (I’m the best ever!)
I’m somebody you’ll never forget cause I work hard and sweat in my tears. (Can’t be stopped!)
I’m never falling again and if I did, I’d come back

[Verse 1 – Madonna:]
If you try and fail, get up again
Destiny will choose you in the end
If you don’t make the choice
And you don’t use your voice
Someone else will speak for you instead
What you want is just within your reach
But you gotta practice what you preach
You pay with sweat and tears
And overcome your fears
Never let the fire inside you leave

[Chorus – Madonna:]
“I can’t”, “icon” – two letters apart
One step away from being lost in the dark
Just shine your light like a beautiful star
Show the world who you are, who you are

Yeah, there’s another part of you no one sees
There’s a burning fire that’s underneath
Baby, don’t you know you were meant to be
Born to be, meant to be

Iconic
Iconic
Ironic
Iconic

[Verse 3 – Madonna:]
Tell me I’m no good and I’ll be great
Say I have to fight and I can’t wait
Standing in the wings
A butterfly that stings
I will rise above cuz it’s my fate

[Chorus – Madonna:]
“I can’t”, “icon” – two letters apart
One step away from being lost in the dark
Just shine your light like a beautiful star
Show the world who you are, who you are

Yeah, there’s another part of you no one sees
There’s a burning fire that’s underneath
Baby, don’t you know you were meant to be
Born to be, meant to be

Iconic
Iconic
Ironic
Iconic

[Bridge – Madonna:]
Born to be a superstar, that’s exactly what you are
Born to be a superstar, that’s exactly what you are

[Verse 4 – Chance The Rapper:]
Alright
Firefly change when they catch ya
Wanna put ya in their net for their light glow
Yellow brick highway
Paparazzi piled up on the high road
They just turned the sun into an idol
They just want to see how high the sky go
Just to find how it feel to fall back
Madonna said I remind her of Michael
Steady blowin’ up my head
Blowin’ up my head
Put it on your wall
Put me in the school book
Put me in your laws
Put me in the desk
And in the synagogues
Firefly glow when they catch ya
Wanna catch ya when ya lights go dim
Wanna turn you to a letter in their logo
Wanna stick you in a jar with a pen
You an icon

[Chorus – Madonna:]
“I can’t”, “icon” – two letters apart
One step away from being lost in the dark
Just shine your light like a beautiful star
Show the world who you are, who you are

Yeah, there’s another part of you no one sees
There’s a burning fire that’s underneath
Baby, don’t you know you were meant to be
Born to be, meant to be

Iconic
Iconic
Ironic
Iconic

Iconic
Iconic
Ironic
Iconic

So in a sense the trip to NYC planned by my cousin was the preamble to my new life.  It was one last hurrah before shit got real. And I will be forever grateful to him for doing all that for me.  Even if he had no idea what it would all end up meaning.

20150918_182506

Oh and then I get all Holy Water (Bitch Get Off My Pole!)

 

 

Battle

Sep11

Its’ amazing how you get a dose of normalcy and then something happens to remind you that you are still fighting.  I have to keep reminding myself that I still have a long way to go here. I am getting stronger to be able to do radiation. I have no idea how that is going to affect me. From what I understand it may make me a bit tired, but nothing crazy. I’m starting to have the symptoms of someone who has sat around for a few months doing nothing.  Oh yeah…I had. So there is a lot of muscle loss and loss of muscle control. In part due to the lack of movement but also with the lack of hormones in my body it’s causing other rather unpleasant side affects.

So as I sit here this morning all upset and feeling defeated I figure I can do one of two things. I can sit around and be defeated, whither away and cry and give in to Cruella’s overall plan to destroy me. Or get mad and totally be like “fuck this shit.”  And kinda the way I am…guess which one we are going with.  So put the battle gear back on (you aren’t done with it yet) and get your ass in there and do something. Plan of attack: 1. Diet. I have alreadth-2y started to eat better, but this just enforces it. 2. Exercise! I have been taking walks around the property every day, but warrior mode time.  We are going to join the gym. My job from here on out is to gain strength both mentally and physically to be able to handle shit.

I talk a lot about the physical side, but mentally it comes and goes.  This part of treatment is kind of sucking because I have days where I’m on top of my game and I feel “normal” and then other days I crash and burn and can’t remember anything. So welcome to limbo. 3. This is why I also decided to do this Sign Language course on line. I’m hoping it will help with the brain part of it.  I also have this airplane game I play where you have to manage the incoming and outgoing aircraft without blowing anyone up.  So it’s using reasoning and deduction skills. Oh that and this cooking game….where you have to take orders and get food out on time. I think it helps.  Who knows!

I’m in the mood to RANT! RANT! RANT! but it turns into me just being a BITCH! BITCH! BITCH! and I’m trying not to do that any more.  See how long that lasts….

I just have to remember to put myself first still and not fall into other people’s drama.

Finding Inspiration

Sep6

I just got back from my weekly poking at the drs. I’m down to 5ccs now…I mean really? We are going to truly ride this out til the very end aren’t we. Whatever. So I go back in 2 weeks.  I’m starting to just accept that every week (now two) I’m going to get a needle stuck in my side to see how much fluid we extract.  Might I say from some of the support boards I’ve been on other people have like major fluid…not this measly amount to deal with.

Anyhoo…I was reading through some blog posts of fun exciting people like myself who have taken this little journey or are currently taking it.  I got to thinking about what my purpose is for even writing a blog. I started this as a way to keep my friends and family updated on my progress.  Of course after the initial “I HAVE CANCER” everyone is interested everyone is concerned.  Then as time goes on fewer and fewer people are engaged in your progress or what you are going through.  I know someone who was diagnosed with breast cancer that told me once she was diagnosed she stopped reading my blog.  Now, I was trying to understand that.  And in part I do. But I am such the opposite. When I was diagnosed I joined a support group though the cancer center and then the on line boards which led me to a lot of different people blogging about their experience. The people I met in Chemo were more than inspiring and I learned so much about not only my cancer but other types of cancer.  I joined a work out group for cancer patients where again listening to people’s stories inspired me and taught me event more. I listened to the struggles of other warriors out there and learned to appreciate my situation. I found comfort that other people were making it through the struggle. They were having bad days too. They weren’t always positive.  They weren’t always negative.  It made me feel that I wasn’t alone in this journey and that some of the things I was going through and feeling were okay.  So now that my friends and family are pretty much over this journey…Many of them think that as soon as you get through a certain point it’s all okay. What I’m finding is that each step has it’s own struggles and it’s far from over.  It’s a long process that I have stated before that not everyone has the stamina to hang in there with you.

So here I am in another limbo (lots of BAM! treatment….sit around and wait) I’m in Physical Therapy, still getting one stupid seroma drained just waiting until the day I can raise my arm over my head so I can start radiation.  So again….if my readership is down why the heck am I still doing this?  I think at this point it is first of all for me.  It’s been helpful to get my thoughts down and go back and re-read where I was at what time. I also THINK my hope is to help someone who has gone through this.  I hope that someone who has been diagnosed or is in some limbo stage where you are frustrated and losing hope that you will get to move on can see that there is a struggle to stay sane through the rough times. That everything must end at some point.  And you will get to move on; not always when or how you want, but you will get to move on.

I know I have a long journey left, and a lot of story to share ahead.  I’m starting to ponder the life after treatments and what the new normal will be like.  Will I always live in fear? Will I finally accept living each day in the present? Will I gain my self confidence back? Will I lose a part of myself? What will I gain?  What lessons will I truly take away from this experience?  And I think, for me, a big part is knowing that my story is not the only story out there.  There are others just like me who are asking these same questions.  I want to find some of these people and learn how they dealt with each stage, each setback, what kept them going. I want to share how I dealt with each of these things as well to hopefully help someone along just like me.

So to those friends and family who still read this silly thing every now and then…thank you.  For those who are going into war or in the war….I hope my posts can help in any way…and never be afraid to ask me questions if you have them.  I have found that you may not win every battle, but as long as you win the war it’s all good.

Side story here:  So when you have breast cancer by the time you go through Chemo and have surgery you are so over any bit of being discreet.  The dr has interns that he brings in…”do you mind” and I’m like “nope…there are still a few people left in the hospital who haven’t gotten to touch my chest yet…so why not”  And like I just take my shirt of before people leave the room….like seriously…nothing to see here…and like I said…so many people have looked and touched my chest the last year…who cares! LOL!

 

My journey through pictures…Phase I…Chemo

Jun9

So from the MRI and the biopsy that confirmed my life through the last day of Chemo….

It was a time.  Good days and bad days.  But one thing is for sure, I don’t ever want to have to go through any of that again!  And I would never wish it on my worst enemy.  Even though I’m starting to feel better, I’m far from done and I know some effects of chemo will continue for months possibly years after the last session.

FYI my hair started really falling out about 4 weeks into chemo.  I decided to just shave it since it was very upsetting to have clumps of hair come out at a time.  I’m now waiting to see how long it will take to start growing back!!!

With the weight.  I actually gained 10 lbs during chemo. Which if you talk to the drs that is a good thing.  There is no losing weight allowed during chemo. I was told to make sure I keep my calories up by any means to make sure I stay strong.  So I did.  Sometimes the only thing your body will accept is things that aren’t necessarily good for you.  But it beats the alternative of losing a bunch of weight and having transfusions and being hospitalized because your immune system is so bad.  My immune system held up pretty good for the most part.  The last session my numbers dropped pretty low.  So I’ve had to pretty much stay away from people and out of public to avoid germs.  I’ll know next week if I’m allowed back into the general population again!

The anti hormone shots are a killer.  And to think I get to do those for the next 5 years.  Yay!

I did finally stop taking the anti nausea medication a few days ago.  That has actually helped…I don’t crave sugar any more.  So I can finally get on the eating right kick.  Yay fish!  So lots of cooking which isn’t a bad thing.  Also been starting out with walking for 30 minutes each morning.  I’m sure over time I will increase that and change it to running but for now, I have to build up again.  Also started resistance training, stretching and yoga.  So the 3 main things to keep this stuff away….Diet, Exercise and De-stress my life.

Waiting patiently for phase 2 which I find out about next week.  Up next:  Immunotherapy and Surgery!

Power Port Back
Power Port frong

The First Day of the Rest of My Life

Feb23

First Chemo session was today.  I’m not going to lie.  I was a mess this morning.  I mean the whole “this could be the last time I wash my hair”  but then countered with “this could be the last time I shave my legs”  So it kind of evens out a bit.  Going in was rough.  Learned that if you cry they clear the room.  So that’s something to keep in my back pocket for the future.

The doctor came in and talked to me about what was going to happen and my Genetic Test report came back and I do not carry any gene for any type of cancer.  So…..fluke.  “No variants of clinical or uncertain significance were detected by sequencing in BRCA1 or BRCA2.  No large deletions or duplication were identified.”  So at least nothing that was detected through this.  It is still possible that there is a pathogenic variant that isn’t detectable in these tests or another gene.

The other test that came back good was the EKG. So heart is good to go for stuff.  Also good to know.  That test was fun to watch actually.  I mean pretty amazing stuff.  I do think that when you are like in your 20s you should have a PET and EKG done just so that you can see that you really do have these organs and stuff and how delicate everything is…and maybe you won’t do things like eat stupid shit for a long time or smoke or drink like a fish.  I don’t know…just a side thought.

Okay so today.  They do some blood work to make sure everything looks good, and to see if there have been any changes since the last time they took blood from you.  (this is going to be a thing.)  Then because I don’t have my port in yet they had to do an IV.  There is one chemo drug that it’s not ideal to do it this way but more on that in a second.  After they do the IV they run saline through you then give you a bag of it to hydrate ya up a bit.  Then you get some drugs for nausea and a steriod. (Zofran and Compazine)  This is about an hour.  Then you get the good stuff.  Because I had the IV they had to manually push the Adriamycin in.  It’s really hard on the veins so they had to go back and forth and administer it in small doses and dilute it a bit with the saline. Nurse had skillz.  It’s red, kind of aggressive looking.  But it’s the stuff that’s going to knock Cruella off her horse.

Then after that one they hook up the Cyclophosphamide.  This lasts about an hour.  After that’s done you finish off the saline, they disconnect you and you go home.

This part of the chemo is the most aggressive and harsh.  That’s why it’s every other week for the first 4 sessions (cycles).  Then the next 12 weeks is still aggressive but not as…so I’ll go once a week for that. For all you medical types that chemo will be TAXOL.

I talked to the dietitian today which was very helpful in what and how to eat.  Not too many changes.  Don’t eat any added sugar if possible.  Stay away from processed foods.  Don’t eat anything low-fat or fat free.  Don’t cut out food groups.  Basically a Whole Food diet.  Everything in moderation. And exercise.  I feel pretty good about that because I really do love certain things!  But the goal throughout chemo is to maintain weight.  Not the time to be trying to lose anything.  And obviously try not to gain any.  Then after chemo is over I can work on the losing weight thing again…but I have to use the parameters stated above.

Tomorrow I go in for a shot of Neulasta/Neupogen to boost white blood cells.  I have a bunch of anti nausea meds and anxiety stuff.  So I should be in good shape.

Now.  I had to tell the story of the tiara.  The nurses are all going to see if they can’t make Tiara Tuesday an official thing every week in the “Chemo Lounge.”  And they are going to see if they can order minion stickers or band aids.  See….changing the world one step at a time!

That’s all I know right now.  So we wait to see how I react to all these drugs and stuff.  OH.  The chemo drugs stay in the system for about 72 hours.  And then I recharge and reload til next time.

Warning. If I start repeating myself it’s not my fault!!!!

Thank you all for the love through this so far.  I really am lucky to have such a wonderful group of family and friends for support…even if everyone is far away.  Just know it does help pull me back into battle mode.  And tonight…and every Tuesday in addition to tiaras, everyone should pour their favorite drink and raise your glass for me.  I can’t drink right now so knowing that all of you are will make me happy!  Live vicariously through you all until I kick this thing in the ass.

MUUUUUUUUAAAAAAAAAAAHHHHHHHHHHHHHHHH

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