Hasn’t been a real eventful day today. I am overwhelmed with all the love and support from everyone. “THEY LOVE ME….THEY REALLY LOVE ME…”
Had my appointment with the Radiology Oncologist. Well isn’t radiation therapy long and intensive. Sheesh! Basically this was just to get all the paperwork filled out there and then meet the Rad Onc. so that I know who everyone is. Again, she did an exam. (I swear everyone just wants to feel me up) Got her take on what they would do when the radiation therapy portion comes up. So we watched a video on it and got the rundown on how that all works.
So the one thing I did learn is that most likely next week I will get a chest port so they don’t have to keep poking my arm….I said I was okay with that since I didn’t want to have track marks and have people think I was some drug addict. So of course I didn’t know what a chest port was. I asked if I could bedazzle it. Yeah. You can’t. I’m also thinking about getting my own hospital gown. I mean I found a couple sites that have them. And some with matching pillow cases and hats! I mean come on…that has to happen. And I’m sure I can some how managed to get some bling in there.
So I have a few days off. Tuesday is the appointment with the surgeon (and the chest port). Then the PET scan Wednesday and I find out Staging and my plan of attack on Friday.
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I will be praying and put you on our prayer list at church. I hate to hear this but God can truly work miracles. Hopefully you caught it in plenty of time. BTW. need your new address.
You got this and your energy will help! My only two pieces of unsolicited advice based on my experience with Frank’s melanoma journey (which was stage IV 3 years ago and he is cancer free right now!): 1) don’t be shy about having boundaries- asking people to not give you treatment advice (you have a medical team for that), or only sharing parts of the information in terms of prognosis etc that you want to share , or not posting all the time. Basically doing what you need to keep your sanity and be selfish! 2) don’t hesitate to ask for help with meals, rides, your dogs, hanging out, whatever. People want to help because it means they are doing something for you. I would add keep a sense of humor, no matter how dark, but you already have that covered :-)
I think about you daily and am sending you positive, healing vibes!! Love ya!! I’m here any time and I’m a pretty good listener.
You can beat anything!