Tag Archive | #hormones

First Day of the Rest of My life

Well…yesterday was my last radiation session. I was doing good emotionally…then I stopped in the Chemo lounge like I usually do to say hi to everyone.  And I lost it.  Luckily the Social Worker was there.  So I asked her if we could talk a bit.  Sunday I had a complete mental breakdown. I had decided I wasn’t going to finish and just quit. (yes with one session left…I’m such a rebel).  She explained to me that it is completely normal. Some people after treatment go back to work after everything (or just continue to work) and like 3 months later it hits them like a ton of bricks.  In my case, I don’t have a job to continue or go back to.  When I got to Montana the plan was to set up house and then get a job and start over.  But this got in the way.  So between the pressure of selling the house last year, and then moving and then getting diagnosed, I folded.  I was to a point where I didnt’ HAVE to be strong anymore.  As I explained to her, throughout this process I would have my little hissy fit and cry for like 5-10 minutes and then shake it off and deal again.  There was that little voice in my head that would tell me to knock it off and woman up and get back in there.  Sunday, that little voice wasn’t there.  It just let me go.  So after talking to her it really helped to hear that it’s okay. That I’m normal. That I need to look at this as an opportunity to do whatever I want. I have a totally blank slate to work with.  And yes it can be scary…but it can also be exciting.  She told me to write down everything I like to do. What I want out of life. Then go and find things to try. Take a class or go to some club meeting.  I have absolutely nothing to lose.   My little voice is back…he is tired…but he is back.  So after treatment we went and had a beer at the place we had a beer the day I was diagnosed. Seemed fitting.

Last night I started a new sleep anti-anxiety medication Trazodone (Desyrel).  I’m not sure how I feel about this one.  I took it at 8:30 and about 20 minutes later I felt like I was floating. Then I was out like a rock. Woke up at midnight. Went back to sleep for 2 hours and then was up from about 2:30 to 4:00am. Went back to sleep until 5:15am. Stayed up for about an hour and then went back to sleep again, woke up about 9:00am.  Now the first 3 hours no dreams, I was out.  Then the next 2 hours I had crazy dreams. I mean at one point I had no idea what was real and what was the dream. I was having dreams within dreams. I mean in my dream I woke up and was telling my husband about the crazy dreams I had.  It got a little better the last few hours…normal kind of dreams but very vivid.  It’s almost like everything that I fear or that has happened that bothers me came out in my dreams.  I’ll see how it goes tonight.  I was a little groggy when I finally woke up…but if the dreams don’t calm down we are going to have to change this med.  I mean I don’t mind vivid…and sometimes they can be entertaining…but some stuff is just down right scary!

Today was my first day on Aromasin (Exemestane).  So far so good.  Took it at 9:30.  Didn’t have my first hot flash until 3:45.  That’s doable.  I don’t expect I’ll start feeling anything terribly different the first day…if I feel any different at all.  I mean a lot of the side effects are the same as the Lupron I’m already on, so they may just intensify a bit and I won’t notice….(let’s hope for that).

I was also supposed to just sit here all day and just watch TV. That was the plan.  I was going to be a total bum!  Well…I went downstairs and ended up starting on my craft room.  Mind you, I haven’t had the energy since we moved in to get to it.  So just about everything is still in boxes.  I have to figure out a shelving system of where I’m going to put all this stuff!  I also organized all the CD’s we have. You know, made sure the right CD was in the right case.  And then proceeded to put them in a box since no one really uses CDs anymore.  But it was fun to see what we have!

So my plan is to finish setting up my craft room.  Then make some stuff. Look to see if there are any classes on anything I might be interested in. Keep an eye on the job boards to see what is out there. I have kinda been doing this since I got here so that won’t really be any different.  I’m going to see how I feel the first of the year and maybe register with the staffing agency in town do some temporary work for a bit, maybe part time until I find something I like to do that they will give me money for.

My goal is to move forward and not look back….there really isn’t anything I need back there.  I’ve spent the last week mentally preparing myself for LIFE AFTER CANCER. Well, here we are. We have broken me down to rock bottom mentally and physically.  And this is how we start to make a Diva…

Because I’m Fabulous!

I met with my Medical Oncologist today.  I’m going to start on Aromasin (Exemestane) on Monday.  I take the Lupron shots every 6 months. This shot shuts my ovaries down so I don’t produce any estrogen. The adrenal glands still produce hormones so the Aromasin will stop this production of estrogen. This should ensure that this cancer that is estrogen driven can’t redevelop or do anything. I will be on these two medications for the next 10 years.  So the Lupron forces me into menopause.  Because there is no test to see when exactly my body will go into menopause for real, they are doing 10 years….by that time my body should have hit the natural menopause state. Interesting stuff right?  Now the Aromasin is a bit on the harsh side. Most people get put on Tamoxifen which has fewer side effects but isn’t as effective for my type of cancer. But if I can’t tolerate the Aromasin I’ll get switched over to the Tamoxifen.  If I can tolerate the Aromasin I may end up getting my ovaries removed so I don’t have to do the Lupron shot anymore. That would be one less medication to take. We’ll see how it goes. (just like Christmas…going to be quite the surprise!)

We are also stopping my Ativan (Lorazepam) for insomnia since it has seemed to stop working. We are going to change it up and going to Desyrel (Trazodone) we’ll see how that works out for me.  It’s supposed to not only help me sleep at night but help with any mood swings due to all the lack of hormones in my body. We’ll see how that works out. YAY Drugs!

At this appointment, my oncologist tells me now that I’m pretty much done with treatment that not everyone who goes through the rigorous aggressive course of treatfabment I took makes it.  I honestly didn’t know how to take that?  I mean that’s kinda scary. I have to think she meant that they had to break the treatment up some or change chemo drugs. Go me. Wow. Oh. I honestly have no idea how to react to that.  Just glad I didn’t know the odds before hand.
She checked out the lumps that have been bugging me the last few weeks.  I developed some bb sized lumps in my chest so when I found them a few weeks back my heart just sunk. She said they were probably nothing but we would keep an eye on them. The odds of any cancer developing at this point is about impossible.  But again, we would check them to see if they have changed in 6 weeks when I go back.

After this appointment, I went to Support Group.  Lately, I can only stay for the first 1/2 hour since I have to go to radiation.  Well, there is a new member. She had been diagnosed with stage 1 breast cancer 12 years ago. She had a lumpectomy and was good.  A few months ago it came back as metastatic breast cancer – Stage IV. My heart just hurts for her. She was so strong to come to support group and to announce that you have Stage IV cancer has to be just one of the hardest things in the world to do. I just wanted to hug her. While not curable, it is treatable. She’ll go on an oral chemo to keep it under control…..And I was just sitting there freaking out that this new medication said that I could lose my hair.  So I’m no longer freaking out about the possibility of losing my hair again or have it thin. This is why they make wigs.  So be it if it happens. Again something brought me down to the reality of the whole situation and to just be thankful to be alive. I also thought: I’m sure glad I made the decision to have a double mastectomy vs. just the single.  I mean they said that the odds of it coming back in another breast were slim to none. I was like yeah, it was a slim to none chance I got it in the first place so….I’d rather go through this once then have to go through it twice. But hey..there is no guarantee something else won’t develop down the line.  So I think I’ll just enjoy the time I have here and deal with whatever comes when it does.

Then I went to radiation. #30 #2 of the booster. 3 more left.  I’ve resorted to gang signs in the count-down.  But the chest is looking pretty bad ass at this point.  It’s getting quite impressive. Met with the Radiology Oncologist.  I told her about the bb sized lumps and she checked them out and said it was just scar tissue and effects to the tissue from radiation. Nothing to worry about. But again she said that we would keep an eye on it over time when we did CT scans.  Because you know I get to do those every 6 months now. So if anything develops from here on out we will catch it pretty quick. But she wants to see me again on Friday to check the status of my skin to see if we will do the last radiation treatment on Monday or just end it on Friday.  They are pretty impressed that I haven’t had to take a break with radiation. Most people have to take a few weeks off about half way through. It’s because I’m just that fucking amazing….really.

Now I’m not usually the type of person that boasts about myself…I’m actually very modest….even though I joke a lot about the whole Fabulous thing. But you know I think for this I’m going to make an exception.  Don’t worry…I won’t let it get to my head and I’ll only do it for a few days. :)

Oh. The downside of all this anti-hormone nonsense….my drinking days are pretty much over. I suppose it’s okay. I had a good run. And any more when I have wine or beer I feel like crap after just 1…so be it.

 

Iconic – BITCH Get Off My Pole!

As I was sitting here the last few days I’ve realized all the things that have gone on the last few years.  Two years ago on September 17th I had my hysterectomy.  I have a whole theory about how this is what threw my body into a hormonal frenzy which brought me to where I am today…but I won’t go into that.  I just remember at the time I thought that was like the worst surgery ever.  I think I would trade it now. So I take that back.

THEN last year on September 17th I left for New York to visit my cousin. See NYC/Madonna 2015 Trip for details.  I look back at some of the pictures and it was like they were telling me something… for instance:

20150918_125127 We were walking down the street and I just happened to pick out this picture and was drawn to it..so I took a picture thinking I may need to be reminded one day. Who knew that this was a message to myself in just a few short months.  I mean between the staying behind to sell the house while the husband moved to Montana, to the finding of the lump just 2 months later and trying to convince myself that it was nothing.  DENIAL!!!!  I don’t think I was really denial, it was me trying to stay positive.

Then there was this beauty:

What the heck possessed me to take this picture in the first place? I mean again…walking through 20150918_142219the park and of all the things to take a picture of…really?  The cosmos trying to tell me something. Not typically the type of picture I would take. But at the time it struck me.

So then we go to the Madonna concert. of course I had been listening to the entire album months prior. I mean one must be able to sing at least 90% of the songs at the concert you are going to!  But one song stuck out more that the rest for me.  Little did I know it would end up being my theme song through everything that has happened the last year. So I ended up playing this song as I left Colorado after being there for 17 years.  I played this as I entered Missoula, a place I had never been to but would end up calling home and a place my life would forever change.  I played this to every Drs appointment, every chemo appointment, going to surgery and will play it through every radiation treatment.  When I start to think I can’t get through something I play this to remind me to be Iconic.

Iconic – Madonna

[Intro – Mike Tyson:]
I’m the best the world has ever seen. (I’m the best ever!)
I’m somebody you’ll never forget cause I work hard and sweat in my tears. (Can’t be stopped!)
I’m never falling again and if I did, I’d come back

[Verse 1 – Madonna:]
If you try and fail, get up again
Destiny will choose you in the end
If you don’t make the choice
And you don’t use your voice
Someone else will speak for you instead
What you want is just within your reach
But you gotta practice what you preach
You pay with sweat and tears
And overcome your fears
Never let the fire inside you leave

[Chorus – Madonna:]
“I can’t”, “icon” – two letters apart
One step away from being lost in the dark
Just shine your light like a beautiful star
Show the world who you are, who you are

Yeah, there’s another part of you no one sees
There’s a burning fire that’s underneath
Baby, don’t you know you were meant to be
Born to be, meant to be

Iconic
Iconic
Ironic
Iconic

[Verse 3 – Madonna:]
Tell me I’m no good and I’ll be great
Say I have to fight and I can’t wait
Standing in the wings
A butterfly that stings
I will rise above cuz it’s my fate

[Chorus – Madonna:]
“I can’t”, “icon” – two letters apart
One step away from being lost in the dark
Just shine your light like a beautiful star
Show the world who you are, who you are

Yeah, there’s another part of you no one sees
There’s a burning fire that’s underneath
Baby, don’t you know you were meant to be
Born to be, meant to be

Iconic
Iconic
Ironic
Iconic

[Bridge – Madonna:]
Born to be a superstar, that’s exactly what you are
Born to be a superstar, that’s exactly what you are

[Verse 4 – Chance The Rapper:]
Alright
Firefly change when they catch ya
Wanna put ya in their net for their light glow
Yellow brick highway
Paparazzi piled up on the high road
They just turned the sun into an idol
They just want to see how high the sky go
Just to find how it feel to fall back
Madonna said I remind her of Michael
Steady blowin’ up my head
Blowin’ up my head
Put it on your wall
Put me in the school book
Put me in your laws
Put me in the desk
And in the synagogues
Firefly glow when they catch ya
Wanna catch ya when ya lights go dim
Wanna turn you to a letter in their logo
Wanna stick you in a jar with a pen
You an icon

[Chorus – Madonna:]
“I can’t”, “icon” – two letters apart
One step away from being lost in the dark
Just shine your light like a beautiful star
Show the world who you are, who you are

Yeah, there’s another part of you no one sees
There’s a burning fire that’s underneath
Baby, don’t you know you were meant to be
Born to be, meant to be

Iconic
Iconic
Ironic
Iconic

Iconic
Iconic
Ironic
Iconic

So in a sense the trip to NYC planned by my cousin was the preamble to my new life.  It was one last hurrah before shit got real. And I will be forever grateful to him for doing all that for me.  Even if he had no idea what it would all end up meaning.

20150918_182506

Oh and then I get all Holy Water (Bitch Get Off My Pole!)