Tag Archive | post cancer

What Next

I’ve been sitting here the last few days trying to figure out what my next steps are. What exactly it is I need to do and what I want to do. I was told at one point to look at this as having a blank slate. So I sit here staring at a blank slate wondering what my first stroke will be. I may be over thinking this. I feel like whatever color I choose or shape I create will define the remainder of my life. Logically I know this isn’t true. But I think I’m putting unnecessary pressure on myself to make sure I do everything just right. It’s like I want this next chapter to be perfect. I know that isn’t right. If I have learned anything I should go in with 3 paint brushes in each hand all different colors and just go nuts. Of course, that’s kind of how I’ve always lived my life it seems. I’ve never had a specific direction. I’ve always just flown by the seat of my pants and wait to see where things take me. I’ve never had a plan.  Which is just crazy for someone who seems to always be planning something. So I’ve been really taking a look at my life and myself. It’s been hard to look at myself from an outside point of view. Being totally objective. Being without personal emotional attachment.

Through treatment, I had been in a bit of a daze. I just went and did what I was told. I didn’t have to think too much about what to do and where I was going. The only thing I needed to know and be aware of is getting through all of it. My whole thought process was very simple, “whatever needs to be done to get this out of my body and make sure it never comes back…let’s do that.” It was all very simple. The drugs from chemo really affected my brain function. Surgery really messed with my mental state. Radiation wore me down mentally and physically. I sit here a month and a half after everything slowly coming out of all this fog. I still have trouble verbally communicating. I have the thought in my head but I can’t think of all the words I’m supposed to use.  Sometimes I can’t think of the order the words are supposed to be in. It’s like my brain and verbal function is not connected sometimes. Other things I have issues with are planning and multitasking. I purposely decided to cook specific things this holiday season because cooking, I have found, helps with all those functions. I have to plan it out and then do things in a specific order and at a specific time. That has helped. Of course, if something goes wrong I panic and then I lose my ability to communicate and reason. On the up side, it has shown me exactly where my weaknesses are and what I need to work on. I’ve been doing a lot of word games to try to help this. I also found some other games that help with order and reasoning.

Physically, I go back and forth between extreme fatigue and wanting to run a marathon. The physical part I’m not as concerned about. I go and work out at least 3-4 times a week at this point. I run, walk, swim and stretch.  Coming up here soon I’ll be upping the work outs a bit more. Weights for my upper body are a tricky thing yet. I tried but I have to be very careful. If I do too much my whole upper body swells.  I figured the swimming will help the upper body some. And I did start to do planks. Eventually, my upper body will be strong enough to start adding weights on dry land. But for now, we keep it in the water.

I’m trying to look at things as positively and realistically as possible. If I were to say 2017 is going to be a fabulous year and there will be nothing but good things happening I would be delusional. I look at 2016 as the year of being torn down. This means 2017 is the year to rebuild. It’s not going to be easy. There are going to be some roadblocks (there always are). It’s going to be a tough road.  Another battle…a different battle. I have to set realistic expectations of myself. Just like “oh treatments over now, it’s done and you can go back to your life” isn’t a reality (although how nice would that be). In reality, it’s “now that treatment is over what the hell am I left with here and how can I make this work.” The major problem that I’m finding is my mental state. This is my biggest hurdle. I find that I don’t seem to care about the same things as much as I did before. My priorities have shifted. The question is have they shifted so much that I’m not going to be able to function. I think there is a balance I have to develop.

For 2017 there are going to be a lot of changes. I want to say I’m never going to look back, but sometimes you have to look back to see how far you have come. I think the key is to not dwell on the past. Look fondly at the experience regardless of what that experience was. Remember the lessons you have learned from it, extract anything that could be useful for a current situation or one you are faced with, and then let it go and move on. Never dwell on the negative and get lost in the details of what happened. I don’t want to live there again. I’m hoping that each year will get easier. Right now appointments are every 3 months. As they become every 6 months and hopefully every year I will be able to relax and find my new place in this life and create things I never thought were possible.  Whatever….Right now I have to try to figure out how to live with this cloud over my head. Maybe someday that will go away too.

Let’s Get this Party Started!!!

So the first week after treatment was pretty much a wash. I had a heck of a time with the transition of one of the new meds they put me on. I decided to not take that one anymore and just stick with what they originally had me on (Lorazapam/Ativan).  I’ll take 2 pills vs. 1 pill.  It works well enough most of the time. I would rather do that then deal with the mess of the other stuff. The side effects are pretty minimal for the Aromasin. I’m slow to get moving in the morning and then get pretty fatigued later in the day. I do have muscle and bone pain if I sit too long.  As long as I get up and move regularly I’m pretty okay. I have my ditzy days….I mean trying to do more than one thing at a time is a challenge. I’m going to start doing word puzzles and other mind game things to see if that helps any.

Becuase of my lack of sleep last week I didn’t go to the gym. Went Sunday finally. Only did 20 minutes, but I changed over to the treadmill again.  My initial thought was to start out slow and just take it from ground zero. Then about 10 minutes in I decided to jog every other minute. I wanted to see if I could do it and how it would feel afterward. I was a little swollen in the arms and chest but nothing major. Probably more from my lack of water intake! Yesterday I had a super bad day mentally. I was having issues with doing little things.  I went to the store and what should have taken maybe an hour, took me 4.  Nothing concerning just would lose track of what I was looking for and then got distracted looking at other things. So I’ll start Yoga next Monday!  Today I went and started out on the elliptical again…yeah, I now have this thing in my head. I’m a goal oriented person. So this jogging/walking thing is meeting that.  I got on the treadmill and set it for 20 minutes. Instead of doing every other minute, I had the track setting on so I ran half the track then walked half the track to see how far I would get.  So the goal is to be able to run the full 20 minutes and then add from there.  I had the thought of doing the 5k I did in January when I first got to Missoula. In talking with a friend tonight, she pretty much convinced me that I should set that goal. Now I am not expecting to run the whole thing and place. I just want to be able to run most of it and cross the finish line. I started thinking about it and it would be kinda symbolic for me. Last year’s 5k was on January 29th. I was officially diagnosed February 9th.  So it would be kind of a pick up where I left off sort of thing.

I feel like I’m on the right track. Diet wise I’m doing pretty good, other than not drinking enough water. I’ve started to plan the meals on Sunday. And I actually went grocery shopping by myself for the first time in 9 months. It felt good. It felt normal. So I have my little cards with the dinners for the week. So far it’s working (okay yeah, it’s Tuesday). But I haven’t been too keen on anything overly sweet. It seems if I have anything too sweet or too salty my arms and chest area swell up. So at least I now have a built-in indicator. OH! I got little pill cases with the days of the week on them to make sure I take everything I’m supposed to. I know it’s silly, but these are the things that excite me these days.

Saturday we went out to get a bed frame for the guest room. The mattress has just been sitting on the floor.  Well, they wanted like $80 for just a basic metal frame to get it off the floor.  We went into one of the furniture stores and there was a clearance/scratch and dent section and there was a complete headboard and everything for $200. It was originally $599.  So I think it was a good deal. This thing is so high the side railings are used as steps to get up in the bed.  IT’S AWESOME!!!!! And of course I had to get a new bedspread…then the curtains didn’t match…it just snowballed.  But the guest room is now all set up. Now to work on the craft room so I can start….crafting!

Oh. So I go to look for a picture for this post. I google “Party” and then go to images. Wow…..just wow.  Sorry no picture I’m still processing.  LOL